Friday, February 23

In case you're wondering, Fridays are pretty boring, which is why I don't write about them much.

It's just Mom & me, not that I'm complaining. We give me a bath if we're up to it, do other personal care …… boring. Otherwise, I spend the day reading, writing (dictating to computer), listening to magazines & books on tape/cd, or playing some sort of solitaire…basically whatever I can do by myself. That Mom can rest, something she seems to need a lot of, clean, launder, cook, do repairs, sell herbs, sew, etc., etc., etc.

Right now, I'm learning how to dress a duck, IOW* listening to Outdoor Life. I really like this magazine -- especially the column by Peter McManus. He is LOL funny!

*In Other Words

Thursday, February 22

More respite ridiculousness…& I feel, frankly, insulted.

Juli B., the newbie (who, btw, is leaving in June), asked if I wasn't upset with the new form that Humboldt Child Care Council was working on to make my & only my respite workers sign. The form will tell the workers what they are NOT allowed to do with me, like not feed me and not suction mucus from my mouth even if I'm choking.

1) This is the first I've heard of it, & I hate it when anyone does anything behind my back.

2) Why am I being singled out?

Monday, February 19

This morning Clover told me she has to reduce her hours even more. She really needs to go out in service more as she's waaaaay behind in hours. Glad I'm not her.

But now I have to find more workers! Sara can only come for a couple hours at a time; Toni is already doing all she can; Juli B. is a good worker, but can only come on weekday mornings.

Am feeling v. frustrated.

Sunday, February 18

Another windy day keeping me home from the meeting. *sigh*

So, besides listening to an excellent talk that went along extremely well with the wt study, I constructively spent my time today 1) working on the NY trip & 2) fixing this blog.

1) suggested to Mom we take the South Rim around the Grand Canyon, as nat'l park site says, & thus saved 160+ miles from our route

2) wanted to customize the blog without having to learn html, so had to get a Google email account [am sure Google will take over the world :P ], but very satisfied with results so far

Severe Hunger Pangs obviously affecting language skills. Must…eat…soon…

Note to self: Do Not let anything distract Mom from cooking!

Almost forgot…

After Dave hooked us up to listen to the meeting, he asked us to call the Brinkman's. Nelson (their son-in-law) answered & said they couldn't listen because things were real serious. I actually thought he said Opal had died, but I had misheard. Guess it'll be soon, though, from his tone of voice, like today or this week.

Wednesday, February 14

I took a deep breath & called Coyan just now. Our conversation went something like this:

C: Huhllo.

L: Hi! It's me …… Lilyán. [self-deprecating giggle]

C: Lily?!!! [chuckles] I was just thinking about you a half an hour ago; I had a new postcard to put in the Lilyan file.

L: Yeah? [giggles] Nice.

C: So, how are you doing? How's your mom?

L: I'm doing a lot better, a lot better. And I've got enough caregivers now so Mom can rest more and go out in field service and to the meetings.

C: Good, good, I'm glad to hear it. You, you sound fantastic! So much clearer, stronger…like you can breathe.

L: Yes, I can. Breathing…it's a special privilege.

C: A special privilege. Indeed it is. ………So, you have someone with you right now, tonight?

L: Uh huh. I have Toni.

C: Tony?!
{I hate how the written word can't express vocal tones. In this case, deeper & very serious.}

L: Yes, Toni. [giggles] She's a girl.

C: Oh, ... Toni. …............... I'm sure you share the truth with her as often as you can. Are you suceeding?

L: Yeah, I try. I think it's going well.

C: Well, tell her thank you for doing such a good job caring for you.

L: Okay, I will. [barely supressed giggles]

C: Your example must be very encouraging to those around you, and in the congregation.

L: So they tell me.
{We are now skipping a personal part of the conversation & moving on.}

L: ………Um, the reason I called is to let you know we're coming to New York in September.

C: Here?! You're going to be here? in New York?

L: Yeeesss. [giggles]

C: Wow. ……All right, when will you be here? Do you know the exact date?

L: September 22nd or 23rd--

C: Hold on, wait just a minute. [long pause, then pages moving] Now, did you say September 10th?

L: No. Actually, we'll be leaving close to that date cause we're driving--

C: Driving?

L: Yes. [giggles]

C: To New York? [low whistle]

L: Yes. [outright laughter]

C: Is anyone going with you?

L: A couple sisters from our congregation.

C: [sighs] Oh good. [clears throat] So when exactly will you get here to New York?

L: The last week in September.

C: That's September 23rd to the end of the month…[writing sounds] Do you have Lunch arranged for?

L: Um, I don't know. Lupita said she'd take care of everything, food, lodging, tours, the works.

C: Of course. Hmm.…Tell you what, once you settle on a schedule, have Lupita contact me and I'll get you all in for Lunch with either a tour before or after. All right?

L: Yes, all right.

C: Now I can't guarantee to be there for your tour, but what I can do is have you and your caregiver and Lupita over for dinner up in my rooms -- either Thursday or Friday. You decide when and have Lupita tell me. How does that sound?

L: Fine, just fine.

C: Okay, then Lily. I have a work-related meeting to get to, so I'll talk you later, all right?

L: Yes, okay.


Okay, obviously I'm not the most brilliant of conversationalists! & I giggle waaay too much. But, besides that....
Can you see why I'm bouncing in my chair?!

We get to not only tour Bethel, but have Lunch there!! (Yes, I know, thousands of people do that all the time, but not me.)

Then, we're having dinner in Coyan's apartment. This is so COOL. I can't wait to see all his plants & his photos from his adventures!

Monday, February 5


Another cousin to love!

Today, I, Lilyán, went for 11 hours straight -- from 8:45 am to 7:45 pm -- without any extra oxygen! You do realize that means I was free from being tethered to my tank all day?! It was like I was almost normal again. (Yes, yes, I know, when was I ever remotely normal?) I haven't been without extra oxygen since March 14, 2006.

Hooray for me!!

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